IMPORTANT: Anyone in the UK with PA or a b12 deficient: either diagnosed or SUSPECTED, there are new guidelines out for treatment. These guidelines state that if you have the symptoms you MUST be treated with injections, EVEN in the ABSENCE of low serum blood results. This is because the serum b12 blood test is FLAWED and many, many factors can give you a false high reading. This means people with a b12 deficiency are going Undiagnosed and, most importantly, untreated. If you have neurological symptoms then your GP MUST treat you. This has been circulated to all docs and is OFFICIAL new guidelines for the UK. They are not perfect, but they are better than what we have. Your doctor needs to look in their copy of the BNF 9.1.2 as this will tell them how to treat. The KEY factor is that you just have injections every other day until YOU feel no further improvement in your neurological symptoms. Keep a diary as it is easy to forget things but don't just allow them to stop regular treatment at their decision. It is your RIGHT to receive regular treatment. This is far from perfect but it is a start. It is a big document so scroll down to p29 for the flow diagram that will be of use to you and that you can print to show the docs xx
http://www.bcshguidelines.com/documents/BCSH_Cobalamin_and_Folate_Guidelines_(2).docx.pdf
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